Many of you have been following the story of Haley.. She is a young girl who is suffering from a life threatening disease called Myelodysplastic Syndrome (MDS)..
Haley received the much needed bone marrow donor and transplant in August... Unfortunately - things did not work out the way we had hoped... First - Haley developed a very serious fungal infection in her lungs - the worst kind she could have gotten and was put in ICU on life support... The doctors believed Haley would not make it and advised the family to say their goodbyes... But then - they decided to try and use donor white cells to fight the infection - People all over heard the need and showed up at UCLA for the long 3 day process of extracting their white cells to save Haley's life... Today -the infection is mostly gone and she is off life support... The bad news is this...
Yesterday - the family learned that the white cells that Haley is producing are her own.. The donor marrow is not working... Haley will undergo another bone marrow biopsy to confirm the blood tests but it does not look good.. What this means is that - Haley will most likely have the infected part of her lung removed - once the infection is completely out of her body - she will undergo chemotherapy - to prepare her body for another bone marrow transplant... First a donor must be found... again.
If you are healthy - please get tested to be a match - it's a simple swab of your mouth -that's it.. That simple test could help save the life of a child or adult.... For more information on being a donor - you can go to Be The Match. You can also help the family and Be The Match by donating money for the testing. A paypal link is on the sidebar - all monies go to Haley's family.
You can send cards and letters addressed to: For Haley - 9808 Mistletoe Ave - Fountain Valley, CA 92708. Email can go to KMLDRL@aol.com...
Thank you.
Such a sad case, I really hope and PRAY that everything turns out okay for her.
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