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I'm mad... I'm sad... I'm wondering why God lets awful things happen... If you have been following my blog this year - you may have seen and/or read several posts about a young girl named Haley who is fighting a rare disease called Myelodyspastic syndrome (MDS).. At first - we were looking for people willing to sign up as a bone marrow donor via Be The Match. Many people signed up and after a few months a donor was found...
In August - Haley started chemotherapy to get her body ready for the donor marrow... She received the transplant... Within a week - She was not feeling well and was advised that she had a deadly fungal infection in both of her lungs... The doctors tried to prepare the family to say their goodbyes.... All of a sudden - the idea to get donor white cells to fight the infection came up... People showed up in droves to UCLA Medical center to donate their white cells - ( a long 3 day process).... Haley's lungs were clearing up - She was taken off life support and a light at the end of the tunnel was starting to be seen... The possibility of coming home by Halloween was even discussed... until...
Haley started to feel poorly again by the beginning to middle of September... October 5th - Haley learned that the transplant did not work... By October 14th she is back in ICU in need of oxygen... Every day - getting worse... Every day Haley's mom, dad, family, and friends watch Haley go further away.. Many of Haley's friends have come by to love her.. share stories with her... two of Haley's favorite bands were even allowed to serenade her in ICU this weekend.. Such an outpouring of love... prayers... compassion... and an over powering feeling of helplessness....
I know this is not about me... I get it... But I can't help but feel so mad... I can picture in my mind -my life long friend (Haley's mom) cuddling in bed with her baby girl.. Wishing like hell she could switch places with her... I can't help but wonder where is God in this... Why does it feel that He is sitting back and just waiting to take Haley home? I hate being mad at Him... But I would be a liar if I said that I wasn't... This is not fair... This sucks.... and I want to fix it!!!!
I had a daughter that passed away shortly after she was born... Many of my friends felt very uncomfortable.. not knowing what to say... feeling helpless... trying to avoid the topic of my loss... avoiding me because they to wanted to fix it.... I would hear those little sayings that people say in a time of loss - things like... "She's in Heaven visiting with her grandparents" or my personal favorite - "Heaven is this perfect place and could not be perfect without children" Well - you know what - these sayings are crap... So if you find yourself wanting to comfort a friend with these stupid little sayings.. do everyone a favor and don't - hug them instead... or just be still....
So today, November 6 - Haley is still fighting for her life... Her family and friends by her side... Today I am Praying for God to say "YES - I will heal her body" "YES - I will give Haley's family a HUGE miracle"....